Created by the Visual Snow Initiative (VSI), this interactive world map highlights the global impact of Visual Snow Syndrome (VSS), a neurological condition affecting vision, hearing, cognition, and quality of life. Its main symptom is constant visual snow: flickering dots or static seen 24/7, eyes open or closed. VSS can also include other visual, sensory, and cognitive disturbances.
Each pin represents a person with VSS, showing it affects people of all ages around the world. The map raises awareness, fosters connection, and reminds those affected they are not alone, while supporting prevalence tracking and epidemiological research.
As of 2025, VSI has heard from individuals in over 93 countries. Launched in 2025-2026, the map helps demonstrate VSS’s global prevalence and severity. Historically and still often misdiagnosed or dismissed due to lack of awareness, VSS affects countless people worldwide, making it vital to show the condition is real and the community is visible.
